My interest in patient education research and practice comes from a wide experience in health promotion, prevention and rehabilitation in relation to chronic disease. I have worked with health promotion in the area of heart disease on a national and an international basis together with municipalities, regions, NGOs, policy makers and researchers. Significant to my research over the years is also health services research, including health technology assessments, studies of health care professionals, patients and persons at risk of chronic illness.
My research, scientific publications and lecture activity is now focused on diabetes patient education and support. I have a special interest in developing and utilizing research methods that provide a voice for the patients and involve patients in their care and education as well as in research processes. Patient and family perspectives on diabetes education and support are primary research areas.
2000 Master of Public Health, University of Copenhagen.
1993 Diploma Studies in management, VIA University College in Aarhus
1981 CGFNS Certificate (American Authorization as RN)
1981 Bachelor of nursing, Roskilde Hospital
Principal Investigator, Patient Education Research, Steno Health Promotion Center, Steno Diabetes Center (2010-present).Head of Health & Prevention, Danish Heart Foundation, (2006 - 2010).
Chief Advisor, MUUSMANN Research & Consulting (Health Promotion, Prevention and Rehabilitation), (2005-2006).
Research Manager (Health Services Research), Research Center for Health and Prevention, Region of Copenhagen, (2000 - 2005).
Selected positions of trust
Deputy Chair Prevention Council, Danish Diabetes Association (2012 -2014)Member National Prevention Council (2010-2012).
Deputy chair in DK EACH (European Association of Communication in Healthcare) (2012 -2014).
Member of International Publication Planning Committee of the DAWN2-study (Diabetes, Attitudes, Wishes and Needs) (2010 - 2015).Member of working group, Danish Board of Technology: Obesity as a problem in society (2009-2011).
Supervisor for Ph.D. students and master students.
Associate editor Diabetic Medicine (2015 - )
External examiner in Public Health Science at all universities in Denmark (2006 - )
Winning abstract, 47th EASD Annual Meeting, Lissabon, september 2011, The Diabetes Education Study Group of EASD (abstract: Patients with type 2 diabetes prefer education based on participation and development of competences over information).
Best Poster Award, 18th Annual Meeting of the International Society of Technology Assessment in Health Care, Berlin, 2002 (poster: Dietary guidance in the primary health care sector by dietician or general practitioner – a health technology assessment).
Kvalitetsprisen (Best Quality Management) 1997, Dansk Selskab for Kvalitetsudvikling (Danish Society of Quality in Healthcare) (received together with D.MSc. Torben Jørgensen, Management of patient pathway and patient care in patients with breast cancer)
Selected oral presentations the last 3 years
2015, World Diabetes Congress, Vancouver, Canada.
2015, WONCA, Istanbul.
2014, European Association for Communication in Healthcare Conference. Amsterdam, The Netherlands, St. Andrews, UK.
2014, Annual Meeting of the Austrian Diabetes Society. Salzburg.
2013, American Diabetes Association Annual Conference. Chicago, US.
2013, World Diabetes Congress, Melbourne, Australia.
Selected scientific publications
Pals RA, Olesen K, Willaing I. What does theory-driven evaluation add to the analysis of self-reported outcomes of diabetes education? A comparative realist evaluation of a participatory patient education approach. Patient Education and Counselling 2016
Hempler NF, Joensen LE, Willaing I. Social network, social support and health behaviour in people with type 1 and type 2 diabetes: cross-sectional studies. BMC Public Health 2016.
Joensen LE, Almdal T and Willaing I. Associations between patient characteristics, social relations, diabetes management, quality of life, glycaemic control and emotional burden in type 1 diabetes. Primary Care Diabetes. DOI:10.1016/j.pcd.2015.06.007
Pals RA, Hansen UM, Johansen CB, Hansen CS, Jørgensen ME, Fleischer F, Willaing I. Making sense of a new technology in clinical practice: a qualitative study of patient and physician perspectives. BMC Health Services Research 2015;14:402. DOI 10.1186/s12913-015-1071-1.
Torenholt R, Engelund G, Willaing I. Bringing person-centeredness and active involvement into reality: The feasibility of a participatory concept for patient education. Health Education 2015;115(6).
Varming AR, Hansen UM, Andrésdóttir G, Husted GR, Willaing I. Empowerment, motivation and medical adherence (EMMA): The feasibility of a program for patient-centered consultations to support medication adherence and blood glucose control in adults with type 2 diabetes. Patient Preference and Adherence 2015;9:1243-1253. DOI http://dx.doi.org/10.2147/PPA.S85528
Jensen NK, Pals RAS, Willaing I. The use of dialogue tools to promote dialogue-based and person-centred patient education for people with type 2 diabetes. Chronic Illness. DOI: 10.1177/1742395315625099
Schwennesen N, Henriksen JE, Willaing I. Patient explanations for non-attendance at type 2 diabetes self-management education: a qualitative study. Scandinavian Journal of Caring Sciences. 2015; DOI: 10.1111/scs.12245.
Stenov V, Henriksen JE, Folker AP, Skinner TC, Willaing I. Educator talk ratio as a quality indicator in group-based patient education. Health Education Journal 2015;DOI: 10.1177/0017896915574556.
Nicic S, Nørby K, Johansen CB, Willaing I. Pilot Study of Flow and Meaningfulness as Psychological Learning Concepts in Patient Education: A Short Report. Psychology. Vol.5 No.6(2014), Article ID:45338,6 pages DOI:10.4236/psych.2014.56066.
Johansen C, Torenholt R, Hommel E, Wittrup M, Cleal B, Willaing I. (2014) Barriers to Addressing Psychological Problems in Diabetes: Perspectives of Diabetologists on Routine Diabetes Consultations in Denmark. J Psychol Psychother 4: 141. doi: 10.4172/2161-0487.1000141.
Stuckey HL, Mullan-Jensen C, Reach G,Kovacs-Burns K, Piana N, Vallis M, Wens J, Willaing I, Skovlund SE, Peyrot M. Personal Accounts of the Negative and Adaptive Psychosocial Experiences of People With Diabetes in the Second Diabetes Attitudes, Wishes and Needs (DAWN2) Study. Diabetes care 06/2014; DOI: 10.2337/dc13-2536
Voight JR, Hansen UM, Glindorf M, Poulsen R, Willaing I. Action research as a method for changing patient education practice in a clinical diabetes setting. Action Research Journal 2014. DOI: 10.1177/1476750314534453.
Engelund G, Hansen UM, Willaing I. ‘The Health Education Juggler’: Development of a model describing educator roles in participatory, group-based patient education. Health Education 2014: 114(5):398-412.
Torenholt R, Schwennesen N, Willaing I. Lost in translation - the role of family in interventions among adults with diabetes: a systematic review. Diabetic Medicine 2014 Jan;31(1):15-23. doi: 10.1111/dme.12290.
Andersen TH, Hempler NF, Willaing I. Educator challenges using participatory methods in group-based patient education. Health Education 2014:114(2): 152 - 165.
Munch P, Hempler NF, Andersen GS, Willaing I, Ridderstråle M. Ny digital platform skal styrke patienternes involvering i egen behandling. Tidsskrift for Dansk Sundhedsvæsen: 90(4):10-17.
Joensen LE, Almdal TP, Willaing I. Type 1 diabetes and living without a partner: Psychological and social aspects, self-management behaviour, and glycaemic control. Published in Diabetes Research and Clinical Practice 2013 Sep;101(3):278-85.
Joensen LE, Tapager I, Willaing I. Diabetes distress in Type 1 diabetes-a new measurement fit for purpose. Published in Diabetes Medicine 2013 30(9):1132-1139.
Hempler FN, Ekholm O, Willaing I. Differences in social relations between persons with type 2 diabetes and the general population. Published in Scandinavian Journal of Public Health 2013 Jun;41(4):340-3.
Willaing I, A Rogvi S, Bøgelund M, Almdal T, Schiøtz M. Recall of HbA1c and self-management behaviours, patient activation, perception of care and diabetes distress in Type 2 diabetes. Diabetic Medicine. 2013 Apr;30(4):e139-42.
Peyrot M, Burns KK, Davies M, Forbes A, Hermanns N, Holt R, Kalra S, Nicolucci A, Pouwer F, Wens J, Willaing I, Skovlund SE. Diabetes Attitudes Wishes and Needs 2 (DAWN2): a multinational, multi-stakeholder study of psychosocial issues in diabetes and person-centred diabetes care. Diabetes Research and Clinical Practice. 2013 Feb;99(2):174-84.
Kovacs Burns K, Nicolucci A, Holt RI, Willaing I, Hermanns N, Kalra S, Wens J, Pouwer F, Skovlund SE, Peyrot M. Diabetes Attitudes, Wishes and Needs second study (DAWN2™): cross-national benchmarking indicators for family members living with people with diabetes. Diabetic Medicine 2013 Jul;30(7):778-88.
Rogvi S, Tapager I, Almdal T, Schiøtz M, Willaing I. Patient factors and glycemic control – associations and explanatory power. Published in Diabetic Medicine 2012 Oct;29(10).
Schiøtz M, Bøgelund M, Almdal T, Willaing I. Discrete choice as a method for exploring education preferences in a Danish population of patients with type 2 diabetes. Patient Education and Counselling 2012 May;87(2).
Schiøtz M, Bøgelund M, Almdal T, Jensen BB, Willaing I. Social support and self-management behaviour among patients with Type 2 diabetes. Diabetic Medicine 2012;29:654-611.
Schiøtz M. Bøgelund M, Willaing I. Challenges using online surveys in a Danish population of people with type 2 diabetes. Chronic Illness. 2011;8(1):56-63.
Mathiesen TP, Willaing I, Freil M, Jorgensen T, Andreasen AH, Ladelund S, Harling H. How Do Patients with Colorectal Cancer Perceive Treatment and Care Compared with the Treattreating Health care Professionals? Medical Care 2007; 45(5):394-400.
Mathiesen TP, Freil M, Willaing I, Jorgensen T, Andreasen AH, Ladelund S, Harling H. Do Patients Differentiate between Aspects of Healthcare Quality? 2006 Journal of Healthcare Quality – Web Exclusive. 29(1):W1-3-W1-10.
Torp CR, Vinkler S, Pedersen KD, Hansen FR, Jorgensen T, Willaing I, Olsen J. Model of hospital-supported discharge after stroke. Stroke. 2006,37(6):1514-20. Erratum in: Stroke. 2006 Sep; 37(9):2443.
Folmann NB, Bossen KS, I Willaing, Sørensen J, Andersen JS, Ladelund S, Jørgensen T. Obesity, Use of Hospital Services and Costs. Advances in Health Economics and Health Services Research. 2006;17:319-332.
Kjær T, Gyrd-Hansen D, Willaing I. Investigating patients’ preferences for cardiac rehabilitation in Denmark. International Journal of Technology Assessment in Health Care. 2006; 22(2):211-8.
Olsen, J, Willaing I, Ladelund S, Jørgensen T, Gundgaard J, Sørensen J. Cost-effectiveness of nutritional counselling for obese patients and patients at risk of ischaemic heart disease. Int J Technol Assess Health Care. 2005; 21:194-202.
Willaing I, Ladelund S. Nurse counselling of patients with an overconsumption of alcohol. J Nurs Scholarsh 2005; 37:1;30-35.
Willaing I, Ladelund S, Jørgensen T, Simonsen T, Moll L. Nutritional counselling in primary health care: a randomized comparison of an intervention by general practitioner or dietician. Eur J Cardiovasc Prev Rehabil 2004;11:513-520.
Willaing I, Ladelund S. Smoking behaviour among hospital staff still influences attitudes and counselling on smoking. Nicotine Tob Res 2004;6(2):369-375.
Willaing I, Jørgensen T, Iversen L. How does individual smoking behaviour among hospital staff influence their knowledge of the health consequences of smoking? Scand J Public Health 2003;31:149-55.
Willaing I, Ottsen B. Nursing breast cancer patients - how to optimise communication in the first phase of treatment. Eur J Cancer 1995; 31 A (suppl 5): S 289.
Author/co-author of around 20 book chapters, editing of several books and other research based information on prevention and rehabilitation, public health, health services research and quality management.
Around 50 oral and poster presentations at international and national conferences and for the last 10 years on a yearly basis app 10-15 talks and lectures.
Sidst opdateret 12-01-2017