The Electronic Medical Records at Steno Diabetes Center

Steno Diabetes Center is a diabetes research hospital in the Capital Region of Denmark, where patients with type 1 and type 2 diabetes have been treated for more than 80 years. Steno’s expertise includes insulin pump treatment, diabetes patients with severe comorbidities, adolescents with diabetes, and pregnant women with type 1 diabetes. 

Electronic recording of medical records was introduced in 1998, and the Electronic Medical Records (EMR) at Steno now covers more than 12,000 patients, almost equally split between type 1 and type 2 diabetes patients. Most patients are seen every three months, and clinical data are recorded at every visit.

Administrative data include:

  • Patient information
  • Enrolment and discharge dates
  • Visits and contacts
Clinical data include:
  • Diagnoses of chronic diseases
  • Prescription of medication
  • Pump treatment
  • Lab samples (from blood and urine, and others)
  • Life style information
  • Eye examinations
  • Feet examinations
  • Information on hypoglycaemia and insulin sensitivity 
  • Psychosocial screening questionnaire
The head of the Steno Clinic is responsible for Steno’s EMR. 

Due to close collaboration between Steno’s research departments and the Steno clinic, many patients have from time to time participated in clinical trials – including the Steno 2 Study; Clinical Epidemiology has published several research papers based on cohorts of patients from Steno’s EMR. 

Publications

M Linnemann Jensen, ME Jørgensen, EH Hansen, L Aagaard, B Carstensen: “A Multi-State Model and Algorithm for Measuring Long-Term Adherence to Medication: A Case of Diabetes Mellitus”, (2014), Value in Health, (DOI) 10.1016/j.jval.2013.11.014.

G Andrésdóttir, M Linnemann Jensen, B Carstensen, HH Parving, K Rossing, TW Hansen, P Rossing: “Improved survival and renal prognosis of patients with type 2 diabetes and nephropathy with improved control of risk factors”, (2014), Diabetes Care, (DOI) 10.2337/dc13-2036.

G Andrésdóttir, M Linnemann Jensen, B Carstensen, HH Parving, P Hovind, TW Hansen, P Rossing: “Improved prognosis of diabetic nephropathy in type 1 diabetes”, (2014), Kidney International, (DOI) 10.1038/ki.2014.206.

Jørgensen M.E., Almdal T.P., Færch K. (2014) Reduced incidence of lower-extremity amputations in a Danish diabetes population from 2000 to 2012. Diabetic Medicine; 31(4): 443-7.

Færch K., Carstensen B., Almdal T.P., Jørgensen M.E. (2014) Improved survival among patients with type 2 diabetes in Denmark: A prospective study (2002-2010). J Clin Endocrinol Metab; 99(4):E642-6.

Gæde P, Lund-Andersen H, Parving HH, Pedersen O. Effect of a Multifactorial Intervention on Mortality in Type 2 Diabetes. New England Journal of Medicine. 2008;358(6):580-91.

Gæde P, Vedel P, Larsen N, Jensen GVH, Parving H-H, Pedersen O. Multifactorial intervention and cardiovascular disease in patients with type 2 diabetes. New England Journal of Medicine, The. 2003;348:383-93.

Gæde P, Vedel P, Parving H-H, Pedersen O. Intensified multifactorial intervention in patients with type 2 diabetes mellitus and microalbuminuria: the Steno type 2 randomised study. The Lancet. 1999;353:617-22.

Sidst opdateret 13-05-2016