The Electronic Medical Records at Steno Diabetes Center
Steno Diabetes Center is a diabetes research hospital in the Capital Region of Denmark, where patients with type 1 and type 2 diabetes have been treated for more than 80 years. Steno’s expertise includes insulin pump treatment, diabetes patients with severe comorbidities, adolescents with diabetes, and pregnant women with type 1 diabetes.
Electronic recording of medical records was introduced in 1998, and the Electronic Medical Records (EMR) at Steno now covers more than 12,000 patients, almost equally split between type 1 and type 2 diabetes patients. Most patients are seen every three months, and clinical data are recorded at every visit.
Administrative data include:
- Patient information
- Enrolment and discharge dates
- Visits and contacts
- Diagnoses of chronic diseases
- Prescription of medication
- Pump treatment
- Lab samples (from blood and urine, and others)
- Life style information
- Eye examinations
- Feet examinations
- Information on hypoglycaemia and insulin sensitivity
- Psychosocial screening questionnaire
Due to close collaboration between Steno’s research departments and the Steno clinic, many patients have from time to time participated in clinical trials – including the Steno 2 Study; Clinical Epidemiology has published several research papers based on cohorts of patients from Steno’s EMR.
PublicationsM Linnemann Jensen, ME Jørgensen, EH Hansen, L Aagaard, B Carstensen: “A Multi-State Model and Algorithm for Measuring Long-Term Adherence to Medication: A Case of Diabetes Mellitus”, (2014), Value in Health, (DOI) 10.1016/j.jval.2013.11.014.
G Andrésdóttir, M Linnemann Jensen, B Carstensen, HH Parving, K Rossing, TW Hansen, P Rossing: “Improved survival and renal prognosis of patients with type 2 diabetes and nephropathy with improved control of risk factors”, (2014), Diabetes Care, (DOI) 10.2337/dc13-2036.
G Andrésdóttir, M Linnemann Jensen, B Carstensen, HH Parving, P Hovind, TW Hansen, P Rossing: “Improved prognosis of diabetic nephropathy in type 1 diabetes”, (2014), Kidney International, (DOI) 10.1038/ki.2014.206.
Jørgensen M.E., Almdal T.P., Færch K. (2014) Reduced incidence of lower-extremity amputations in a Danish diabetes population from 2000 to 2012. Diabetic Medicine; 31(4): 443-7.
Færch K., Carstensen B., Almdal T.P., Jørgensen M.E. (2014) Improved survival among patients with type 2 diabetes in Denmark: A prospective study (2002-2010). J Clin Endocrinol Metab; 99(4):E642-6.
Gæde P, Lund-Andersen H, Parving HH, Pedersen O. Effect of a Multifactorial Intervention on Mortality in Type 2 Diabetes. New England Journal of Medicine. 2008;358(6):580-91.
Gæde P, Vedel P, Larsen N, Jensen GVH, Parving H-H, Pedersen O. Multifactorial intervention and cardiovascular disease in patients with type 2 diabetes. New England Journal of Medicine, The. 2003;348:383-93.
Gæde P, Vedel P, Parving H-H, Pedersen O. Intensified multifactorial intervention in patients with type 2 diabetes mellitus and microalbuminuria: the Steno type 2 randomised study. The Lancet. 1999;353:617-22.
Sidst opdateret 13-05-2016